Silent Until It's Not: Why We Can't Wait Another Day to Transform Kidney Care

Advocacy • Chronic Kidney Disease (CKD)
UNGA 2025 Chat with Chris Toth

By Chris Toth, Chief Executive Officer

We live in an era of groundbreaking medical advances, yet one of humanity's greatest health threat remains largely invisible.


Chronic kidney disease affects 850 million people worldwide, but most don't know they have it until it's almost too late. As a result, approximately 4 million people receive dialysis as their kidneys fail.1 And despite advancements in dialysis, access to care and the experiences patients and their loved ones encounter throughout the dialysis therapy process can vary significantly.


How can we address the most pressing global challenges contributing to the disparities in kidney care? This question guided my conversations this week with international government and public health leaders, advocacy groups, and key partners around the 80th Session of the UN General Assembly.


The conversations I've had — including my discussion with Sarah Wells Kocsis from the Milken Institute at the Concordia Annual Summit — reinforced that while the challenges of chronic kidney disease are complex, the path to expand access to home dialysis and improve the care experience is clear.

We must prioritize three critical areas: education, innovation, and evidence.

 

  1. Education: Redefining Where and How Dialysis Happens. 
    We need to think about the care experience holistically, and how it can fit more easily into people’s lives.

    • The option to do dialysis at home, overnight, while sleeping can provide patients with more freedom to focus on what matters to them. Yet home dialysis remains significantly under-utilized because patients simply don't know enough about this option.
    • In addition to raising awareness, we must facilitate ongoing training and education for both patients and clinical teams.

     

  2. Innovation: Leveraging Technology to Support Patients Where They Are. 
    As we invest in innovation over the next 5 years and beyond, we will focus on building:
    • Infrastructure that keeps patients connected with their clinical teams remotely
    • Technology that powers timely insights and updates throughout the treatment process to enable more informed care decisions; and
    • Services that enable proactive support and technical assistance in critical moments.

       

  3. Evidence: Building the Case for Systemic Change. 
    Education and innovation cannot occur in a vacuum.
    • We need to continuously evaluate and validate the impact of these efforts to demonstrate the effects on patient care, quality of life, and overall health economics.
    • This is how we will drive programmatic support and create an environment that facilitates home dialysis access – both from a policy perspective and a care delivery standpoint.

 

The time for bold action is now. Our discussions left me more convinced than ever that breaking down the barriers to home dialysis requires collaboration across organizations, sectors, and geographies. We are eager to continue these vital conversations, and partner with stakeholders to drive innovation and adoption of better therapy options for kidney patients.


The bold change we need is simple yet profound: with education and awareness, supported by a robust technological ecosystem, we can help patients understand their care options and how to better navigate the challenges of chronic kidney disease.


We are at a seminal moment and cannot afford to wait. If we don't do something different now, we will have missed an opportunity to save human lives. By keeping the patient and provider experience at the center of everything we do, we can extend lives and expand possibilities for millions of people around the world.


Watch my full conversation with Sarah Wells Kocsis from the Milken Institute at the 2025 Concordia Annual Summit above.

Références
  1. Jager KJ, Kovesdy C, Langham R, Rosenberg M, Jha V, Zoccali C. A single number for advocacy and communication-
    worldwide more than 850 million individuals have kidney diseases. Kidney Int. 2019;96(5):1048-1050.
    doi:10.1016/j.kint.2019.07.012